ScotCRN YPG at the British Science Festival 2012.
Members of the ScotCRN YPG were invited to take part in a public engagement event entitled Your life story in our hands: A walk through life with your healthcare data, as part of the highly prestigious British Science Festival, which took place in Aberdeen in September 2012.
Issues Concerning Linked Healthcare Data
The event, a mixture of presentations and panel-led discussions comprising Researchers from University of Aberdeen, Clinicians from NHS Grampian, Data Managers, Ethicists and members of the public, explored the complex practical and ethical issues centered around the use of healthcare data for research to improve population health in Scotland. In particular, the event focused on the linkage of healthcare data such as GP, hospital and birth records, to provide researchers with a more complete picture of population health from birth through to death and thus greatly enhancing the scope of future research projects.
Scripted Focus Group
The YPG performed a scripted focus group in conjunction with Dr Sharon Gordon, Manager of the CHIMES Research Programme, which highlighted some key findings from CHIMES on the views of young people and parents/guardians on the use of healthcare data for research. The performance was very well received by an enthusiastic audience of nearly 200, and there are now plans to have the focus group filmed and available online.
For more information about the CHIMES project please visit www.chimesprogramme.org